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Neurodivergent Doctor

Let’s End Ableist School Reports

Updated: May 28


Photo of an Autistic ADHDer child studying a book about the human body. The book is open on the floor and fill most of the photo, the child is mostly our of frame just their hand visible holding the corner of the page. Sibling is also out of frame with their toes visible in the top left corner.
Autistic ADHDer child studying a book about the human body

My child’s school report sits in my inbox and I tingle with anticipation.


I hope this report will celebrate their successes, and compassionately review areas for development. Hope turns to frustration as I read: “(child) has enjoyed working with an Education Assistant to engage in the completion of many class tasks. At times (child) can be reliant on the support of the Education Assistant and is encouraged to persevere when challenged”.


The teacher possibly had good intentions, encouraging my child to be independent. However, the comment is unjust. My child has no lack of perseverance. In fact, they work harder than every other child in the class. They show up each day with acceptance and resolve to tackle the sensory overwhelm, ambiguous instructions and uncertainty of school. I’ve seen this kid’s determination in action - undaunted they’ll re-write and re-draw a birthday card 8 times in a row, until it’s how they want it. I fiercely admire their earnest pursuit. And with their incredible honesty, the idea of asking for help if they didn’t need it would never cross their mind. These are some of my child’s great Autistic strengths!


So when my child asks for help from an Education Assistant, it isn’t a sign of over-dependence. It’s self-advocacy. It is because the task is not accessible, or accommodations are lacking. It is NOT my child’s responsibility to “persevere” without help, it is the responsibility, enshrined in law, of the teacher to provide modifications and support. This will teach my child to be able to ask for necessary accommodations in life. They will know help is available and their needs will be taken seriously.


I email the school.


Many thanks for the care you put into writing (child)’s school report… I have a request about modifying this comment…I would be grateful if you would consider changing it.


The reason is, if (child) was physically disabled instead of cognitively disabled, for example if they were a wheelchair user, we wouldn’t write:


“(child) has enjoyed using a wheelchair to move around the school and access many activities. At times (child) can be reliant on the wheelchair and ramps, and is encouraged to persevere with walking”.


It's been a spirit-crushing school year for my Autistic, ADHDer 7 year old. They have for the first time internalized stigma about being Neurodivergent, telling me “I wish I could be Neurotypical”. In the quiet, vulnerable space of bedtime, we lie side by side and talk into the darkness and they say sadly “I can’t even tell (my teacher) there’s a problem, because it hurts their feelings”. A teacher comments to my child’s Occupational Therapist “I just think Autistic children use these behaviours to get out of doing things they don’t want to do”. We hold meetings, things get better for a while, then go back to misery. I feel quiet, sick unease dropping off my child at the classroom. I consider pulling them out of school, home education, giving up my job. I dream of the end of this school year. We’ve had some truly wonderful teachers at this school, who have cherished my child’s Autistic differences, so I am optimistic things can get better.


I’m not really surprised when this email response arrives from the school.

They appreciate my thoughts and they had a colleague review the report wording. In their view, the phrase was not the intended to disrespect a diagnosed condition and they did not read it that way.


Missing the point, really.


I know these teachers aren’t out to be harmful. I know they work SO hard for not enough pay. I totally understand the lack of resources for disabled kids. But this comment, and the fact that multiple teachers condoned it, is ableism. So I’m taking a stand.


I will follow my child’s example of determination. I’ll escalate to the Principal, Department of Education, and of course the Disability Royal Commission. Until we are understood and the report is fixed, or until this story is heard widely. I do believe ableist school reports can end, and one day we will be shocked that comments like this were considered ok. I can’t wait!


 

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4 Comments


Carmen Cummings
Carmen Cummings
Feb 25, 2022

This is so great to read, and has raised my awareness too. Thank you! More understanding and less defensiveness from school leaders please!

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Neurodivergent Doctor
Feb 25, 2022
Replying to

Thank you!

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Anna Bertalli
Feb 22, 2022

Just brilliant, thank you for putting it so matter-of-factly. Appreciate your lead! X

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Neurodivergent Doctor
Feb 22, 2022
Replying to

Thank you so much Anna, that means a lot. Fingers crossed I’ll be able to post a good news update in future!

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